this biliary atresia experience

Rose is in the baby hammock, left rear, safely evacuated by her aunt. Our birthday lunch this afternoon with the extended family was interrupted by the barbecue catching on fire(?!) Rose's uncles seem to be trying to suppress smiles.

We bump into our nurse friend at our school fete. He's delighted to see Rose enjoying life out of hospital

Enjoying the school fete. This time last year Rose ended up in hospital the night before the fete, with pancreatitis.

It still feels like a supreme novelty to be attending hospital OUTpatient services, rather than the far more familiar INpatient ones.

Pleased at having pulled out her nasogastric tube. (Rose retains it only until she learns how to eat and drink. Easier said than done for children who have had oral feeds banned for long periods.)