Posts

Showing posts from February, 2005
Image
not just a Valentine's Day celebration; a positive pregnancy test!
EXCERPT FROM EMAIL TO FRIEND WHOSE LITTLE GIRL WITH BILIARY ATRESIA IS DOING EXTREMELY WELL

She has enquired about Rose's progress, and I'm replying here:

". . . the transplant surgeon last Friday reckoned that she's "normal". A couple of her liver numbers are still to settle on exactly normal, but they're hovering down near normal. Bilirubin, albumin and ALP are all looking beautiful. (Her last bilirubin level was 2, a big drop from her very orange days that had her bilirubin up over 600!)

But getting away from numbers, she's talking away, scooting around on her bum (her version of crawling), eating like a horse, sleeping like a top, is pushing 11 kilos. She's a very robust little girl. (We always knew she was mentally and emotionally robust, but now her body is coming to the party too.)

She ditched her nasogastric tube at the end of November and is on minimal medication. She hasn't had so much as a cold since she was discharged, despite expo…
Image
EXCERPT FROM EMAIL TO FRIEND

". . .thanks for asking, . . Rose is thriving. She's fantastic liver-wise, and is busily catching up on the milestones she missed while lying on her back. She. . . sleeps beautifully, eats like a horse, and is great fun - we're all having a ball. That Royal Children's Hospital is bloody spectacular, with its cast of hundreds of brainy and kind people who looked after Rose and our entire family. They didn't want just to keep Rose alive, but to become a healthy girl.

Whenever we visit the hospital for one appointment or another, it takes us the whole day, really. We visit her ward, of course, but outside the ward we bump into so many people who we became close to, from the dears who sell raffle tickets at the front door, to the technicians in obscure little specialty departments, to the shrinks, the PSAs, and even the guys who used to make our coffee nice and strong first thing in the morning after a sleepless night with Rose. And of cours…